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FP Report -- June 1998

FP REPORT SPECIAL SECTION:
end of life
Special Section: End of life

Analysis of family system can lead to a 'better' death

In the late 19th century, people usually died in bed at home, surrounded by their families.

The physician told the new family patriarch or matriarch that death was imminent, the preacher was called and family members placed their trust in God as they prepared for their loved one's death.

"Dying wasn't easy then," said Robert Houston, M.D., assistant professor at the University of Wyoming family practice residency program in Casper. "But as the family ministered to their dying loved one's needs, they confirmed the new family order."

In the best of circumstances, the grandchildren remembered how grandma said goodbye and blessed them. They remembered how grandpa encouraged them to realize their dreams.

"The children learned their family's dying behaviors, and they received a family legacy," said Houston. "Today, most of these behaviors are nearly extinct."

Houston said faith in medical technology has undermined the traditional peace and wisdom that many dying patients bequeathed to their families.

"Medical technology has provided us with mixed blessings. We live longer, we live with less disability and we rarely experience the death of a loved one," he said. "But medical technology also has made denial the coping style of choice."

It's the job of the family physician to minimize the trauma associated with dying, Houston said.

"We can provide anticipatory guidance to patients and their families," said Houston. "Successful palliative care can allow the dying persons, their children and their grandchildren to rediscover the arts of reconciliation, bonding and saying farewell."

The family is an integral part of how the patient responds to his or her illness.

"The family's response to illness also impacts the patient's ability to cope with changing physical, emotional and environmental needs," Houston said. "At the end of life, the family provides the concerned family physician with the needed context to help the patient and the patient's family conduct a life review and life validation, as well as attempt exoneration and forgiveness."

photo by Leigh Anne Bathke/AAFP

Family systems and end-of-life care

Family physicians can use the idea of the family system to help patients and their families cope with the end of life.

"The idea of the family system gives the family physician a focus on what you can do to help the survivors," Houston said.

The family system is a way of mapping the emotional milestones in a person's and family's development. It's important for family physicians to note where the patient's family is in the family life cycle. This can help family physicians decide what support is necessary.

The family life cycle comprises six stages:

Family physicians also should recognize that each individual in the family has perceived obligations and entitlements that they protect and maintain within the family system, Houston said.

"And these relationships, obligations and entitlements change as the family system moves through the developmental stages," he said.

Family reconciliation

When individuals don't receive their perceived family or interpersonal entitlements, they usually take action, Houston said.

"Frequently they move to get what they believe they deserve, using threats, manipulation or more dysfunctional behavior," he said. "When a perceived imbalance occurs over a long period, distrust develops within the family relationship."

Family physicians should recognize that each family member has a unique perspective on the family system. The family physician can help the survivors review and understand their family's unique heritage.

"Talking to the family members as well as the patient about the patient's role in the family can give them a sense of belonging," said Houston. "It creates an opportunity for a candid discussion of the family system."

Although this discussion can be difficult for some families, it can lead to forgiveness and an acceptable closure.

"My experience is that attempted closure is better than no closure," said Houston.



FP Report is published by the AAFP News Department. Copyright © 1998 by American Academy of Family Physicians.



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