Childhood Cancer Survey

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Study Description and Methods

Childhood cancer survivors should receive long-term risk-based follow-up care, but there appears to be a disconnect among the physicians treating cancer, the survivors, and their primary care physicians. This survey examines the primary care physicians’ experiences and beliefs regarding long-term health issues and health care practice patterns of adolescent and young adult survivors of pediatric cancer (less than 21 years of age).

The survey was distributed to over 54,000 active members of the American Academy of Family Physicians.

Specific Aims and Objectives

To describe the attitudes and knowledge of family physician regarding the health care of childhood cancer survivors, including understanding of the primary cancer diagnosis, its associated therapies and late effects, and appropriate screening for these individuals.

Key Findings and Publications

The majority of children and adolescents with cancer received follow-up care in a cancer center during their pediatric years. However, most received care from a primary care physician once they reach adulthood. The respondents' discomfort with caring for these patients was partially related to their lack of awareness regarding the published surveillance guidelines. Despite this inexperience, most family physicians (85%) stated they would be willing to care for survivors if they would be able to consult with a cancer center-based physician or survivorship program.

Access the manuscript:

Family physician preferences and knowledge gaps regarding the care of adolescent and young adult survivors of childhood cancer(132 KB PDF). Nathan, P.C., Daugherty, C.K., Wroblewski, K.E. et al. J Cancer Surviv (2013) 7: 275.  

Contact Information

For additional information about this study, please contact:

AAFP National Research Network
1-800-274-2237 x3180

This survey was funded by the University of Chicago.