Management: Late Stage
The tools and resources in this section are helpful for implementing appropriate interventions; making these transitions comfortable while minimizing anxiety and behavioral problems; and maintaining an atmosphere of respect for the patient’s wishes and quality of life.
Suggested: The most effective, comprehensive, and evidence-based information.
Additional: Other approaches physicians and other caregivers may find useful.
Suggested Physician Resources
Antipsychotic Medication Reference(healthinsight.org)
The Antipsychotic Medication Reference is a list of antipsychotic medications, indications, side effects, and issues that would contraindicate use of the antipsychotic medications. Many antipsychotic medications are not approved for the treatment of patients with dementia-related psychosis.
This resource provides a list of suggestions for physicians with alternatives to antipsychotic medications for patients with dementia psychosis.
Dementia Care Practice Recommendations for Assisted Living Residencies and Nursing Homes(www.alz.org)
The Alzheimer’s Association Campaign for Quality and Residential Care created a resource for physicians to manage patients through later stages of the disease. The guide provides strategies, recommendations, and guidance on issues such as talking with families, decision-making, choosing facilities for care, and other parts of care management.
The Alzheimer’s Association Connecticut Chapter provides information related to autopsy. This brief primer can offer steps that are needed to prepare for autopsy and managing the process for a patient who has Alzheimer’s disease.
Patient, Family, and Caregiver Tools and Resources
End of Life: Helping with Comfort and Care(www.nia.nih.gov)
End of Life is a resource from the National Institute on Aging that provides guidance on end-of-life issues, such as providing comfort, care options, understanding health care decisions, and steps to take before and after someone dies. This resource is designed for the family and caregiver, but may be used with input from the doctor or care team.
Late State and End-of-Life Care(www.helpguide.org)
HelpGuide.Org provides mental, emotional, and social health information to patients and families dealing with the final stages of terminal illness.
Additional Physician Resources
Managing Dementia Across the Continuum(static1.squarespace.com)
Adapted from ACT on Alzheimer’s®, Managing Dementia Across the Continuum is a comprehensive listing of resources for mid-to-late stage case management for the dementia patient.